Well, I have now been home for more than a month. I have been back to the Dr. for a CT scan and check up visit twice. My brain now has more fluid on it than when I left the hospital, but because I am doing so good Dr. Maughn does not want to do surgery and put a shunt in.
I was prepared to go in for surgery at the last visit. After we got the CT scans printed, we had about an hour before the Dr. appointment. I couldn't wait, so I pulled the x-rays out and saw they looked the same, if not worse. I told SkyKing we were going in for surgery. He was very unhappy but tried to stay positive for me. Silly boy... like I can't tell when he is upset at this point?
We met with Dr. Maughn and he asked how I was doing. I replied "you tell me". He just said that the pictures offended him. If he looked at the picture he would get me in immediately for surgery, but looking at me he did not want to do it. Basically the same thing he said at the last visit. It was very frustrating because I am not the doctor and I shouldn't have to make this decision. But finally, it was decided to wait another month and get another CT scan. So, hubby is happy and I am confused. I was all prepared for surgery and now I am not having it. It is a weird thing to feel drained after NOT having surgery, but that is what I felt. I was just drained. SkyKing took me to Chik-fil-A for lunch. Yummy. Then we went to pick up Hair and Bug from Grandma and Grandpa's house so that they could get Grandpa to his Dr. appointment.
We went home and SkyKing made the yummiest grilled hamburgers for dinner and we had corn on the cob. So, not having surgery was not so bad. We all watched Star Wars III and had a fun family night. I have the best family ever!
My family and friends have been amazing during this ordeal. We had meals brought to us for the first two weeks I was home almost every night. I had one dear sister bring me a paper with a list of over 40 women who had volunteered to help out in one way or another. Volunteers to take the girls for playdates, volunteers for meals, volunteers for housecleaning and even volunteers for people to come and sit with me while SkyKing was at work. I can not believe how much love we have been shown. It is incredible!
But after a month of being babied at home, I was sick of it. I wanted to get up and do something for myself. So after this last Dr. appointment, I had no more restrictions. It was just left up to me to do what I wanted as long as I took it easy. It has been an eye opener how weak I have become. I can only work for about an hour at a time before I am exhausted. But at least I am doing something. One step at a time.
I was even able to get to Lagoon with SkyKing and the kids twice this last week! We spent the day at Lagoon A Beach and I floated on the lazy river in a tube while they went on the water slides. Then we walked around while the kids went on their favorite rides. I was so happy to get to spend a little fun time with my family! It was heaven!
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